You've Been Diagnosed with Pancreatic Cancer. Now What?

Hearing the words “you have pancreatic cancer” can feel overwhelming. It’s normal to have questions and concerns about what comes next.

Our gastrointestinal (GI) oncologists and surgeons are here to help you along your cancer journey. Let’s look at what to expect after a pancreatic cancer diagnosis and how to prepare for your first oncology appointment.

Meet our Pancreatic Cancer Care Team

What Kind of Doctor Treats Pancreatic Cancer?

A gastroenterologist typically diagnoses pancreatic cancer. The next step is to meet with an oncologist who specializes in gastrointestinal cancers. At Compass Oncology, you also have the opportunity to meet with our pancreatic cancer surgeon. Together, our team will review your biopsy and biomarker test results, establish a stage for the cancer, and determine if surgery to remove the cancer is possible. Based on their findings, a personalized treatment plan is developed and then discussed with you.

At Compass Oncology, you will be cared for by our compassionate team of physicians, advanced practice providers, and supportive care staff. They understand what you’re going through and will do everything they can to help you throughout the entire treatment process.

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Understanding Your Type of Pancreatic Cancer and Its Stage

Not all pancreatic cancers are the same. Several important factors influence your diagnosis and treatment plan. After your cancer care team determines what kind of pancreatic cancer you have and its extent, they will develop your treatment plan

Tumor Location

The tumor can be located in the head, body, or tail of the pancreas. About two-thirds of pancreatic cancers develop in the head of the pancreas.

 

Tumor Type

There are two main types of pancreatic cancer: pancreatic adenocarcinoma, which is the most common type, and neuroendocrine tumors (NETs), which are less common.

Staging

The stage of cancer describes how far it has spread. Pancreatic cancer is first classified based on its resectability (whether it can be surgically removed), as well as the size of the tumor and whether it has affected lymph nodes or other organs.

Learn More About Staging

How Will We Determine Which Pancreatic Cancer Treatments Are Best for Me?

Treatments for pancreatic cancer vary based on whether the cancer can be removed entirely, how far it has spread, and biomarker test results.

If surgery is possible, it will likely be followed by other therapies such as chemotherapy and possibly targeted therapy. In some cases, chemotherapy or radiation therapy may be given before surgery as well as after.

For patients whose pancreatic cancer has spread to distant organs, treatment typically focuses on controlling the cancer, managing symptoms, maintaining strength, and preserving quality of life.

Your team at Compass Oncology will evaluate your current health and cancer diagnosis to recommend effective treatment options. There is no one-size-fits-all approach to cancer treatment, so your path may look very different from another patient's journey.

Pancreatic Cancer Treaments
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The Importance of Biomarker Testing to Determine a Treatment Plan

Biomarker (molecular) testing identifies changes, called mutations, in specific genes. For individuals newly diagnosed with pancreatic cancer, tests are run for two types of genetic mutations: somatic, which are acquired during a patient’s lifetime, and germline, which are inherited.

The results from these tests help guide treatment decisions, such as identifying whether your cancer may respond more favorably to certain targeted therapies or immunotherapies, or if you could benefit from participating in a clinical trial.

Learn About Biomarker Testing

Should You Consider a Second Opinion?

Many patients feel more confident starting treatment after receiving a second opinion. Compass Oncology provides second-opinion consultations for pancreatic cancer patients located throughout the Portland and Vancouver region. Most insurance plans cover second opinions, but it’s best to contact your provider to verify.

Choosing Pancreatic Cancer Care at Compass Oncology

At Compass Oncology, our multidisciplinary team includes a hepato-pancreato-biliary (HPB) surgeon, medical oncologists, radiation oncologists, palliative care experts, and a dedicated supportive care team. These specialists work together to create a personalized treatment plan for each patient. We are committed to providing compassionate and comprehensive care for individuals with pancreatic cancer. With several cancer centers in the Portland and Vancouver area, patients can access advanced therapies, including clinical trials, close to home.

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Preparing for Your First Oncology Appointment

Your first visit with an oncologist can be overwhelming. Consider bringing a friend or family member for support. They can help listen carefully, take notes, and remind you of questions you may want to ask.

Keep Notes

Many important details will be discussed during your initial consultation with the oncologist, making it difficult to remember everything. Bringing a notebook can help you stay organized. Use it to take notes about your appointment and to track symptoms, medications, supplements, and other observations. Be sure to date each entry for accuracy over time.

If a paper notebook isn’t convenient, consider using an electronic option—such as your smartphone or a voice recorder. Whatever method you choose, commit to keeping notes and questions in a central location for easy access.

Write Down Questions

You’ve probably read online resources and talked to others who have a personal experience with your type of cancer, which brings up a lot of questions. Will my treatment be the same? Will I need all the treatments listed? How long will treatment last? And many others as you wait for your first appointment. Write all of this down so that you can be sure your questions are answered as the oncologist reviews the recommended treatment plan, side effects, and supportive care available at the practice. Don’t be shy about asking questions or clarification on anything you hear during your appointment.

Prepare Your Medical Records & Medications

Before your first appointment, your oncologist will need your medical history. If a physician referred you, they will likely send your records and test results to us. However, if you have other conditions such as diabetes, heart disease, or GI conditions, it’s important that your oncologist sees those records so they can assist with possible side effects and provide care for you that encompasses all of your needs. Talk with your doctor’s office to have your records sent to us.

Also, write down a list of all medications and dosages you’re currently taking, as well as vitamins and herbal supplements. There can be interactions with these and your cancer treatments, which the oncologist will discuss after reviewing your list.

Resources for Pancreatic Cancer Patients: You're Not Alone

The Compass Oncology care team provides guidance and support at every step, along with practical information to help you through your pancreatic cancer journey. We offer various patient resources to help you better understand your diagnosis, treatment options, and next steps.

Go to Patient Resources